Chinantics
Life is to short
- Joined
- May 7, 2011
- Messages
- 35
I have a story I would like to share with you, all of you. It has more to do with human behavior than chins, but pertains to all of us sharing the information highway.
I purposely put this in the debate section because it probably will ruffle some feathers but that is not my intensions at all.
On April 16, 2009 I was diagnosed with ALS (Lou Gherigs) disease. For those of you that don't know what that is, in short its a disease that rots every muscle you have until you have and can do nothing. Average life span is 2 to 5 years after diagnosis. Do the math I just hit 2. Not the point though.
After diagnosis i joined an online community called patients like me. It was great, like here it was a wealth of information and put me in touch with people all over the world struggling just like me. You could research all the threads and join in conversations. Not everyone agreed all the time but it worked. I unfortunately lost way to many friends from that site from this disease.
NOW TO MY POINT
I was a newbie there, yet everyone always took their limited precious time and answered all my questions even though they had answered them a hundred times before for others. They were literally there until the day they died.
HANG ON WHILE I GET ON MY SOAP BOX
This forum too has a wealth of information. It is also good to hear from all sides. If we all agreed life would be boring. What i fail to understand is why when a question is posed do people get their heads almost ripped off. Some of you that hold the wisdom get very short and nasty with us. I am here to ask you to help us, guide us, teach us. Help us understand the answer, not just give us the answer. All we ask for is some of your precious time.
Thank you
I purposely put this in the debate section because it probably will ruffle some feathers but that is not my intensions at all.
On April 16, 2009 I was diagnosed with ALS (Lou Gherigs) disease. For those of you that don't know what that is, in short its a disease that rots every muscle you have until you have and can do nothing. Average life span is 2 to 5 years after diagnosis. Do the math I just hit 2. Not the point though.
After diagnosis i joined an online community called patients like me. It was great, like here it was a wealth of information and put me in touch with people all over the world struggling just like me. You could research all the threads and join in conversations. Not everyone agreed all the time but it worked. I unfortunately lost way to many friends from that site from this disease.
NOW TO MY POINT
I was a newbie there, yet everyone always took their limited precious time and answered all my questions even though they had answered them a hundred times before for others. They were literally there until the day they died.
HANG ON WHILE I GET ON MY SOAP BOX
This forum too has a wealth of information. It is also good to hear from all sides. If we all agreed life would be boring. What i fail to understand is why when a question is posed do people get their heads almost ripped off. Some of you that hold the wisdom get very short and nasty with us. I am here to ask you to help us, guide us, teach us. Help us understand the answer, not just give us the answer. All we ask for is some of your precious time.
Thank you