Ashma

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harleygirl

Active member
Joined
Sep 28, 2010
Messages
27
Location
Morrisville, NC
I am not sure if this is the right place to post this but I went to my allergist specialist today and she thinks I have interstitial lung disease and now she thinks that having pets are going to make it worse. I refuse to give up my pets, I know that this is going to kill me so I want to spend my time here on Earth happy and my pets are family. The thing is can anyone recommend an air purifier. I think this will help alot. Thankd
 
I think most any with the HEPA filtration seem to work well. Also invest in a vacuum cleaner with HEPA filters too ;)

I have a kid with allergies to pollen and dust mites.
 
Okay, you mean asthma. Just check online for reviews before you buy any air purifier, and pay attention to the size room it will handle. Ignore things like ionization and other claims, a good HEPA filter is best.

You can make lots of changes in your lifestyle to help eliminate dust and dander - no carpets, just area rugs if you need anything, as those you can vacuum both sides. No curtains - blind you can dust, and shades don't get as dusty as drapes. Mattress covers, etc., all of these will help, and you may regrettably have to try banning pets from the bedroom if possible, to see if this helps your breathing.

Try all those things, no need to give up the pets you love without trying to fix everything else possible in your environment first.
 
actually I have ashma this is much worse then ashma this is where the lungs tissue is dying and will never funtion again and will eventually lead to lung transplant if I am lucky and can find a donor when the time comes
 
actually I have ashma this is much worse then ashma this is where the lungs tissue is dying and will never funtion again and will eventually lead to lung transplant if I am lucky and can find a donor when the time comes

Oh, dear. Sounds scary, but if you do all the things I listed, it still may help. Cleaner air benefits everyone's lungs, or what you have of them. Did they tell you what caused the disease? Just curious.
 
They do not know, it could be anything from enviroment to childhood illnesses. It is very hard to tell. The only thing they know is there is no cure. I agree the only thing I can do is make my home as safe as I can for me so that is why I was wondering about what are the best air purifiers.My husband wants to put Squeaky in the garage for a couple of weeks and see if it helps. I had the symptoms before he came into the house I just thought it was my ashma so I do not see how moving him in the garage is going to do anyting except take him away from me. I know I sound like a spoild child but he relaxes me just watching him bounce around his cage and begging for his skitches everytime I walk by his cage. If I really thought he was the cause I would not mind putting him in the garage but I know he does not. Just how do you convience a husband an a Dr.
 
I think you should make sure you have a diagnosis, I only say that because you wrote your allergist "thinks" you have it. Have you seen a pulmonologist? Have you had tests done, like X-rays, scans or an exercise test? Do you know how severe your case is? I'm not asking so you can answer these questions here, just so you can think about them.

I know in a lot of cases the cause may not be known, but I think it's worth it to make sure your doctor knows if it's say something like an infection, some medications can cause it etc. They've probably already been considered, but just putting it out there. Asthma has many similar symptoms as interstitial lung disease, also.

I'm sorry for your health issues. I think the main thing with a purifier is to take care of the filter properly, and ideally have someone else clean it. If an air purifier does help, then you might be able to narrow down a cause of your disease. Also, there are drugs and therapies out there for people with this disease before considering a transplant. You're probably already on corticosteroids for your asthma, which may or may not help with interstitial lung disease, but there are other drugs as well, although with varying efficacies.
 
Just to clear things up, my allergist says she thinks that I may have Interstitial Lung Disease after we have had chest x-rays, blood work, and the test results she got back from the Pulomonoligst. I have been on Advair 500/50, Spirivia, Singular, Predisone, Flonase, Pro Air, and Ipratopium and nothing has been working. My lung function is down to 30%. We still have more test that needs to be run but I have to be off the Predisone for a week to get acurate results from the exercise test, CT Scan and more blood work. We are still hopeing that it is something different but as she stated this is what all the test are leaning towards. She just wants me to know why she is running these test and so that when I go back next week I can ask her more questions about the disease and we can discuss what we are going to do next. I just basically mentioned it on here to see if anyone else had this and how they cope with it with there chinchilla. I pray every day that I do not have this and that my ashma is just not controlled yet. I would even like to know if anyone that has ashma could suggest something that might help. Like I said maybe this is not the place to mention this but right now I am reaching out to everyone even on here for help with this. Right now I am at the mercy of my doctors and hopeing they know what they are doing.
 
I've never had interstitial lung disease but have had asthma for a decade. It started when I first took up smoking, go figure. I quit about four years ago, and it helped so, so much. I do still have my difficult phases but I haven't been hospitalized for my asthma since I quit. So, er, if you smoke, quitting will greatly improve your breathing. No idea if that is relevant, if you smoke and that's none of my business--just saying I felt a lot better when I quit, actually it probably saved my life, in the short term. I don't know how many years I could have kept that up--smoking and asthma. My last ER visit was the one that made me quit. It took them three days to get my pulse oximeter reading to normal. I went home and threw my pack out after that, since I had already gone three days not smoking.

I have noticed that the chin dust and hay is pretty much the thing I am most reactive to in terms of my asthma attacks. Recently they have been bad because of this and I think I might have bronchitis from a cold I had a few weeks ago or the cold is taking a while to fully clear up. Here are some things I have found helpful over the years, other than quitting smoking. Most likely none of these will be new to you, but maybe it'll make you think of something else you haven't tried:

*Vacuuming frequently
*Remembering to take my pulmicort
*The way I hold my body, try to breath normally and relaxing my body have made a big difference in those times when I thought my lungs were bursting. I feel like the way we position our bodies really has a lot of influence on our breathing that is underestimated by many. Lifting my arms up always helps me and standing or sitting straight up, any kind of slouch can kind of curve your air ways and make it more difficult to breath.
*Have a nebulizer which is very helpful if I run out of my pro air
*Dehumidifiers. For me it's humidity or cold that's the worst weather on my asthma
*Those medical face masks seemed to help my brother also, though I have never tried them
*Exercising, to improve your lung capacity to compensate for your lowered lung function, so you can take in more air while your lungs are able to

I am still very much struggling to control my asthma, I have good years and bad years so the possibility that this may just be your asthma not under control is definitely a valid one to me. Of course, only a doctor can confirm that and I hope you don't have interstitial lung disease but if you do, I would look into any pulmonary rehab programs you may have near you. Ask your doctor for all the treatment information they have on it. You can even ask before you take your other tests since a lot of the treatments for asthma and interstitial lung diseases are the same.

Unfortunately, I don't know any tips for interstitial lung disease, and I would check with your doctor before doing/changing something in your environment for your asthma to make sure it will not aggravate your interstitial lung disease. Best of luck.
 
Hi HarleyGirl,

I'm late to this and don't have much first person info to add that hasn't been already said. My mother has active asthma that sounds exactly like what's been discussed here right down to the list of meds you described. All I'm suffering from is living thru her long road to stabilization (it took years) and my own allergies to pretty much everything except food and meds.

Here's the short version. She really had to work at sterilizing her environment to stabilize her condition. It's a delicate balance she still diligently maintains. She's sensitive to fragrances and chemicals, pollens, grasses, trees, dust, and rabbits. Allergies to fragrances and chemicals is not treatable but the resulting symptom of asthma is.

I know I'm sounding like a downer right now when you really don't want to hear that but here's the thing. If your condition is aggravated by your chin, the best thing you can do for your recovery is to be honest with yourself. My mom is highly allergic to rabbits. I know this because we had two when I was a kid. Dad moved them from the family room to the back yard to help mom's allergies and they gradually built on her to the point where she couldn't be within 50 feet of them without some kind of asthmatic reaction. She couldn't breath in her own back yard. And she couldn't breath in her house when we came in after being out there! We had to give them away and we all cried. So like I said, you know if Squeaky is a problem for you and I sincerely hope you're right that he's not. If he's not, moving him to the garage will do nothing and is unnecessary.

Here's the fragrance problem for my mom. I mention this because chemical allergies are not mainstream and are not directly treatable and perfume is in everything these days and because I've encountered so many people who don't believe fragrance is a legitimate allergen (and because, in treating the resulting asthma, I was exposed to everything mentioned in this thread). Mom found the only way to treat her condition was total avoidance - of all allergy triggers. She uses a dehumidifier for the same reason Caiti does. There are no strongly scented household cleaners, detergents, dish soaps, hand soaps, deoderants, hairsprays, makeup, fabric softeners, air fresheners, paint, candles or any other kind of perfume in her home. She has no pets if you don't count my father. ;p She can't have fresh flowers in the house. She even reacts to peppermint candies and fragrant teas. She reacts to powders and aerosols. She can't have anything that puts ozone into the air so she's very careful to avoid machines that ionize the air. She gives every new appliance a trial period for this reason as well. Everything electronic ionizes the air around it to a certain extent, especially when new. She made a "clean room" of her bedroom and retreats to it when her asthma is really bad and she's tried everything else. No rugs in the bedroom and HEPA filters are her best friends. Her medications react with or negate cold remedies so she does everything she can to avoid getting sick. My family had to learn what we could use to stay in the house and had to continue to use those products when we moved out to be allowed back in. We stay vigilant for "Mom approved" products as the years change so we can continue to visit without causing her discomfort in her home. Her worst season is spring but every season has it's issues.

Me, I'm allergic to natural things like trees, grasses, mold, bee stings, birds and furry things. I sneeze alot in spring and fall. Lately I sneeze alot by the chin cage as my allergies build. I hope I don't have to take my own advice. I use a mask to clean all the cages and I have an air cleaner in my bedroom. I don't have an ion problem but avoid ionizers anyway. I don't enjoy perfume. It causes a metallic taste that stays with me and sometimes causes headaches and an ache in my chest. Mom tells me that's normal and I don't have her problem. Still, I have a mask on my desk at work. It helps some.

I hope fragrances aren't a problem for you, but if they are I hope my mentioning them helps you improve your peak flow. If you need a list of tolerable products my mother uses just let me know and I'll pm one to you. The internet is full of natural alternatives to household cleaners and such if you have the time to search for them, too. You asked about air filters and got good advice from others which I'm repeating - HEPA filters. Just make sure the filter you get can handle the size of the room you put it in. A little bigger is better than too small. It might be a good idea to get two, one for your bedroom and one for Squeaky. If you only get one, put it in your bedroom. I wish you luck with your tests and hope that you don't have the issue your doctor suspects.
 
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