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Laurie

I heart Leonard
Joined
Jan 30, 2009
Messages
4,784
Location
Racine, WI
It is with a sad heart I share the latest Lisa news. The results of her latest CT Scan were not good. Lisa's lung tumor has grown, her chest nodes are again swollen, and her breast cancer has spread now to her liver and kidneys.
What that means is the chemotherapy she's been receiving is not working. Her doctor has recommended a different chemotherapy drug--and also has asked her to be part of a triple negative breast cancer study.
Obviously this is not the news we wanted to hear.
The truth is statistically speaking once brain mets are found the typical life span is about 10 months. Lisa was diagnosed Stage IV on August 1st--so we have had many months.
Lisa is still wanting treatment, as is our family wanting her to continue treatment.
However the two drugs Lisa was receiving were the very best in the fight against breast cancer.
Hopefully many of you know by now triple negative is the most aggressive form of breast cancer and therefore incredibly difficult to treat. It's aggression is quite obvious as it is still spreading throughout Lisa's body despite the fact she received chemotherapy every week for 3 weeks with one week off.
The new chemo will be 2 weeks on 1 week off--pretty much the same side effects with one big difference. The chemo she had been receiving caused numbness in her hands and feet which is why she had no sense of touch, the side effects of the new chemo drug and severe pain and redness in the the hands and feet. For numbness they don't discontinue using chemo, for the severe pain they would--so if she is in fact someone who suffers the side effect they would no longer treat with that chemo.
Lisa has taken this news very hard--I know a part of her still believed even with the terminal diagnosis that her cancer would go away. We got the news yesterday and for the first time discussed funeral and burial arrangements--who would take Sassy her cat and who Eric her son would live with. She is not angry with God, but struggles a bit with her faith as hers is not as strong as mine. She said she feels a bit hypocritical that she wants to find God now--and I told her it is often in the darkest moments we look for and find God--and then I told her just because he was lost to her did not mean she was lost to him.
As a family we continue to support Lisa and LOVE LISA, we all continue to pray.
My many thanks to many of you who daily ask me about Lisa--thank you for thinking of my beautiful sister and keeping her close to your hearts and in your prayers.
 
I'm so sorry to hear this news Laurie. I agree with eroom entirely. Life should NOT be like this for a woman. But it's a constant reminder to the rest of us who are healthy, to remember that life could be worse, and we need to do what we can to enjoy life and live life, and do what we can to keep ourselves healthy. I pray for miracles for Lisa every day. But, should the inevitable happen, know that because you have so personally touched my life, and helped me with the death of my grandma due to cancer, I will be here for you, and I know when Lisa arrives through the golden gates, Gram will be there with her favorite flowers, and a comforting hug, and will be the first to show her around, and take her under her wing. Below you will find a poem that so dearly comforted me before and immediately after my grandmas passing. It still makes me cry. I can only hope the words will some how bring you a bit of peace and comfort in this very trying time. Do not give up Laurie. This isn't over. I pray for the best for Lisa, and I pray that one day a miracle will happen, and she will go into remission, and she will live to see her son graduate, and marry, and see the birth of her grandchildren, and I pray she will have many wonderful years ahead of her.

Do not stand at my grave and weep,
I am not there, I do not sleep.
I am in a thousand winds that blow,
I am the softly falling snow.
I am the gentle showers of rain,
I am the fields of ripening grain.
I am in the morning hush,
I am in the graceful rush
Of beautiful birds in circling flight,
I am the starshine of the night.
I am in the flowers that bloom,
I am in a quiet room.
I am in the birds that sing,
I am in each lovely thing.
Do not stand at my grave and cry,
I am not there. I do not die.
 
Laurie, I am so sorry for your news of Lisa, I was praying that things would improve for her...
Hugs hon
Kim
 
Laurie, I am so sorry to hear about Lisa. I hope she is as pain-free as possible, and that her treatments are not hitting her too hard. I will continue to keep you, Laurie, and the rest of your family in my thoughts. If you ever need to talk you know I'm here for you.
 
I'm so sorry Laurie. I can't begin to express how much I feel for you and your sister. I hope that the chemo doesn't cause her too much discomfort and can continue to be administered for as long as possible. I am not much of a pray-er, but I will pray for your sister.
 
Oh Laurie, I am so very very sad to hear this. I too, had a small hope that somehow, she would get better. I will continue to pray for her that this new drug works and does not cause the pain and that she will have peace in her heart and go to God because she needs him. He is always there. Hugs and prayers.
 
I'm so sad to hear this, Laurie! My heart hurts so much for you all. That is soooo rough. I have been and will continue to pray for you all. Remember that even with the most negative news possible, there is still hope because our hope is in a God that CAN work miracles and has proven to be faithful! God has a plan for her. Hugs!
 
oh Laurie. :( Words cannot express what I want to say. i am crying that anyone has to go through something like this, let alone Lisa, you, and the rest of such a wonderful close knit family. I am so sorry.
 
Oh my laurie! Im so sorry to hear this news! Big hugs to you & the whole family! I cant really find many words right now.

You all will continue to remain in my thoughts!
 
You all are in my thoughts and prayers. I wish there was something I could do. If it helps, just be assured that I truely am thinking of, and commiserating with you guys. Let me know if a little money, or a card sent, or anything might help. Peace be in God. Theresa
 
Thank you all for your kind words and support. This is a very difficult time, but I am thankful everyday for the time I've had with my beautiful sisters Lisa and Lynelle as well as my whole family. We are very close and that is another thing for which I'm grateful. I know many of you wish you could say more, do more, but the truth is there really isn't anything that can be said or done. This is a shock, you often say to yourself, "How is this happening to my beautiful sister--to me--to us?" The truth is there is no answer. What I say to make myself feel better--to understand the how of it, I tell myself how wonderful Lisa is, how beautiful and caring, and then I say why wouldn't God want her in Heaven as she is all those things. We are the selfish ones keeping her here with us. I do believe in miracles, but for me the miracle will be when Lisa is in Heaven where no she will never again be poked or prodded. Where she will never undergo another scan or MRI--she won't have a port stuck in her body to receive poison. The miracle will be when she is with God and my grandmothers, great-grandmother and grandfathers who have gone before us. The miracle will be when God holds her in his arms, a child of his and loves her for eternity.

Even though it may be difficult to us all, I will continue to keep you updated with any information.

She is looking into disability and is still planning on moving to a small house she's rented where she will have to putz in the yard and enjoy nature. We will continue to go out and do as many things as possible while she still feels well--and this new drug may give us even more time than we think.

I know I'm grateful for any extra second I have.

Thank you again to all my forum friends for all your kind words, love and support--it truly, truly means the world to me.
 
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